As part of February 28, World Rare Diseases Day, Acıbadem University Rare Diseases Club, Behçet and Familial Mediterranean Fever Patients Association, Achondroplasia and Their Families Association, Acıbadem University Rare Diseases and Orphan Medicines Application and Research Center and Rare Diseases Network, a first in Turkey, Nadir Music They signed the ’21 project.
In the Nadir Music’21 project, which aims to use the unifying power of music to draw attention to individuals with rare diseases and to raise awareness of rare diseases, they entered the studio by using the unifying power of music to draw attention to individuals with rare diseases and raise awareness of rare diseases. The first song in the project is “Any Cranberries?” They adapted the lyrics to the song. They released their first clip, which they prepared with the videos they recorded and shot in the studio, before February 28.
Rare Music ’21 Project aims to use the unifying power of music to draw attention to individuals with rare diseases and raise awareness of rare diseases. The first song in the project, “Any Cranberries?” The song was sung by the project participants by rearranging the lyrics in order to raise awareness on the subject. Nadir Music’21 Project launch took place on the evening of February 28, 2020, with the participation of individuals with rare diseases and their relatives, association representatives, artists, with a special live broadcast from the Instagram account of Acıbadem University Rare Diseases Club.
In the second phase of the project, it is planned to create a clip with more participants. The background melody of the prepared song and the arranged lyrics will be delivered to those who want to take part in the project, and they will be asked to record a video while singing the song. The second clip created will be shared on World Health Day, April 7, 2021. Everyone who participates together shouts “Nadir’s voice Nadir Music!” they will say.
Source: (BHA) – Beyaz News Agency
